Interview With Jessinking

What are your diagnoses? Which one is causing the most problems right now? rheumatoid arthritis, spinal stenosis, anemia, fibromyalgia, spinal lipoma, slipped right hip disc, ptsd, major depression disorder, general anxiety disorder, mood disorder, bipolar 1, obstructive sleep apenia, high triglycerides, diabetes 2. probably my fibro Could you explain what a day in the lifeContinue reading “Interview With Jessinking”

Medical Gaslighting

What is Medical Gaslighting? Those of us living with rare disease have challenges others may not realize. Fighting against a system which tells us we are not sick, we are not suffering. That perhaps we are making up our illness. When I first realized how sick I was after diagnosis some doctors seems to brushContinue reading “Medical Gaslighting”

The Truth About Abuse

What is the truth about abuse? The social stigma that is attached to it. Abusers are not generally abusive with their friends, sometimes their true nature seeps through and other times it is not. I am tired of the abuse cycle, the sleepless nights, walking on eggshells and feeling unheard. Abuse is not only physicalContinue reading “The Truth About Abuse”

Summer Leaves Us Behind

Summer has come and gone, it is time to bundle up for winter. My joints all ready ache with the fall nipping near. I am excited for my classes to start this week. It has been a long while since I have posted as I have struggled with my health dearly this summer. I gotContinue reading “Summer Leaves Us Behind”

Surviving Chronic Illness Comic #3; Isolation

Surviving Chronic Illness; Learning About Ableist Language

Ableism And Identity               “Move out of your comfort zone. You can only grow if you are willing to feel awkward and uncomfortable when you try something new.” — Brian Tracy.               Ableism is something that has been prevalent in museum settings for ages, accommodations seem to only be made for those who are immobileContinue reading “Surviving Chronic Illness; Learning About Ableist Language”

Is Illness Really Taboo?

            Illness is not taboo, or is it? Ableism is something within society that procures misrepresented ideological views of the disabled and the sick. Ableism is discrimination against people who are disabled. The world is set up for people who are non-disabled; this is a fact. Before I get into the details of my video,Continue reading “Is Illness Really Taboo?”

Behind Surviving Chronic Illness; Ari Cubangbang

            I am a writer, an artist and a student at AUArts. I live with multiple rare diseases and complications from them. I have had non-modularly familial papillary thyroid carcinoma, which spread to my muscle and lymph nodes. I had bilateral radical neck dissection, which resulted in me having muscle, lymph nodes, and thyroid removed.Continue reading “Behind Surviving Chronic Illness; Ari Cubangbang”

Advocating For Yourself

            Something you’ll have to continue to do throughout your disease journey or chronic illness is advocate for yourself. What is advocating? Advocate is defined as “[a] person who is appointed to advise on and protect the rights, needs, etc., of a vulnerable adult or child, and act as his or her representative” (“advocate”). WhenContinue reading “Advocating For Yourself”