For those of you who have the terrible Mast Cell Disease the hangover may be something you are familiar with. Lucky for those of who have Mast Cell Disease we feel hungover when we wake up in the morning. The hangover feeling isn’t from partying all night, or from drinking, it is from our histamineContinue reading “MCAS Hangover”
Tag Archives: spoonie
Disjointed With Ehlers-Danlos Syndrome
Another day another dislocated knee. I sat on the floor looking upwards into the hole where the needle needed to be placed in the machine. The sewing machine needles keep breaking not sure if this is because of a tension issue or something else. Needless to say it needed to be replaced. I got downContinue reading “Disjointed With Ehlers-Danlos Syndrome”
Interview With Jessinking
What are your diagnoses? Which one is causing the most problems right now? rheumatoid arthritis, spinal stenosis, anemia, fibromyalgia, spinal lipoma, slipped right hip disc, ptsd, major depression disorder, general anxiety disorder, mood disorder, bipolar 1, obstructive sleep apenia, high triglycerides, diabetes 2. probably my fibro Could you explain what a day in the lifeContinue reading “Interview With Jessinking”
Medical Gaslighting
What is Medical Gaslighting? Those of us living with rare disease have challenges others may not realize. Fighting against a system which tells us we are not sick, we are not suffering. That perhaps we are making up our illness. When I first realized how sick I was after diagnosis some doctors seems to brushContinue reading “Medical Gaslighting”
The Truth About Abuse
What is the truth about abuse? The social stigma that is attached to it. Abusers are not generally abusive with their friends, sometimes their true nature seeps through and other times it is not. I am tired of the abuse cycle, the sleepless nights, walking on eggshells and feeling unheard. Abuse is not only physicalContinue reading “The Truth About Abuse”
Summer Leaves Us Behind
Summer has come and gone, it is time to bundle up for winter. My joints all ready ache with the fall nipping near. I am excited for my classes to start this week. It has been a long while since I have posted as I have struggled with my health dearly this summer. I gotContinue reading “Summer Leaves Us Behind”
Surviving Chronic Illness Comic #3; Isolation
Surviving Chronic Illness; Learning About Ableist Language
Ableism And Identity “Move out of your comfort zone. You can only grow if you are willing to feel awkward and uncomfortable when you try something new.” — Brian Tracy. Ableism is something that has been prevalent in museum settings for ages, accommodations seem to only be made for those who are immobileContinue reading “Surviving Chronic Illness; Learning About Ableist Language”
Is Illness Really Taboo?
Illness is not taboo, or is it? Ableism is something within society that procures misrepresented ideological views of the disabled and the sick. Ableism is discrimination against people who are disabled. The world is set up for people who are non-disabled; this is a fact. Before I get into the details of my video,Continue reading “Is Illness Really Taboo?”
Behind Surviving Chronic Illness; Ari Cubangbang
I am a writer, an artist and a student at AUArts. I live with multiple rare diseases and complications from them. I have had non-modularly familial papillary thyroid carcinoma, which spread to my muscle and lymph nodes. I had bilateral radical neck dissection, which resulted in me having muscle, lymph nodes, and thyroid removed.Continue reading “Behind Surviving Chronic Illness; Ari Cubangbang”
Life In The Bubble 