Life in the bubble is a documentary that is being made possible by Storyhive and Telus. I have been granted an amazing opportunity to share what it is like to live a bubble life. As someone who lives with my sock to life outside of my bubble is scary. And I feel like it’s timeContinue reading “Documenting The Documentary Journey”
Tag Archives: mast cell disease
Summer Leaves Us Behind
Summer has come and gone, it is time to bundle up for winter. My joints all ready ache with the fall nipping near. I am excited for my classes to start this week. It has been a long while since I have posted as I have struggled with my health dearly this summer. I gotContinue reading “Summer Leaves Us Behind”
Is Illness Really Taboo?
Illness is not taboo, or is it? Ableism is something within society that procures misrepresented ideological views of the disabled and the sick. Ableism is discrimination against people who are disabled. The world is set up for people who are non-disabled; this is a fact. Before I get into the details of my video,Continue reading “Is Illness Really Taboo?”
Behind Surviving Chronic Illness; Ari Cubangbang
I am a writer, an artist and a student at AUArts. I live with multiple rare diseases and complications from them. I have had non-modularly familial papillary thyroid carcinoma, which spread to my muscle and lymph nodes. I had bilateral radical neck dissection, which resulted in me having muscle, lymph nodes, and thyroid removed.Continue reading “Behind Surviving Chronic Illness; Ari Cubangbang”
Advocating For Yourself
Something you’ll have to continue to do throughout your disease journey or chronic illness is advocate for yourself. What is advocating? Advocate is defined as “[a] person who is appointed to advise on and protect the rights, needs, etc., of a vulnerable adult or child, and act as his or her representative” (“advocate”). WhenContinue reading “Advocating For Yourself”
Ableism and Chronic Illness Part 1
Illness is not taboo, or is it? Ableism is something within society that procures misrepresented ideological views of the disabled and the sick. Ableism is discrimination against people who are disabled. The world is set up for people who are non-disabled; this is a fact. Before I get into the details of my video,Continue reading “Ableism and Chronic Illness Part 1”
Allow Yourself To Grieve
What does surviving chronic illness look like? It starts with realizing you are sick, you have a chronic condition, and it isn’t going anywhere. While it may be something of a challenge as you got through the roller coaster of grief, I can tell you that things will change once you get to acceptance.Continue reading “Allow Yourself To Grieve”
Life In The Bubble 