MCAS Hangover

For those of you who have the terrible Mast Cell Disease the hangover may be something you are familiar with. Lucky for those of who have Mast Cell Disease we feel hungover when we wake up in the morning. The hangover feeling isn’t from partying all night, or from drinking, it is from our histamineContinue reading “MCAS Hangover”

Disjointed With Ehlers-Danlos Syndrome

Another day another dislocated knee. I sat on the floor looking upwards into the hole where the needle needed to be placed in the machine. The sewing machine needles keep breaking not sure if this is because of a tension issue or something else. Needless to say it needed to be replaced. I got downContinue reading “Disjointed With Ehlers-Danlos Syndrome”

Disabled Words Used As Descriptors Is Ableist

Where does this feeling of inadequacy come from? Why do we need to try to prove ourselves and our worth to others? These two questions are things I have struggled with greatly as of late. I find myself wondering why is that no one in my family reads my writing. Do they not care, orContinue reading “Disabled Words Used As Descriptors Is Ableist”

Thanks For Bursting My Bubble

What is it like to escape your home? To truly be able to leave your home without a care in the world. To be outside and breathe air not causing you to gasp for breath? I wonder what it is like to be free, to be out and about and doing things with people. BitterContinue reading “Thanks For Bursting My Bubble”

Immunocompromised = Loneliness

What is being immunocompromised like? In a time where there are many viruses outside my home it makes me fear leaving the house. Not only because of the symptoms caused by MCAS but also because of the symptoms caused by having a weakened immune system. There are real dangers lurking outside my safety bubble. ThereContinue reading “Immunocompromised = Loneliness”