For those of you who have the terrible Mast Cell Disease the hangover may be something you are familiar with. Lucky for those of who have Mast Cell Disease we feel hungover when we wake up in the morning. The hangover feeling isn’t from partying all night, or from drinking, it is from our histamineContinue reading “MCAS Hangover”
Tag Archives: ehlers danlos syndrome
Disjointed With Ehlers-Danlos Syndrome
Another day another dislocated knee. I sat on the floor looking upwards into the hole where the needle needed to be placed in the machine. The sewing machine needles keep breaking not sure if this is because of a tension issue or something else. Needless to say it needed to be replaced. I got downContinue reading “Disjointed With Ehlers-Danlos Syndrome”
Disabled Words Used As Descriptors Is Ableist
Where does this feeling of inadequacy come from? Why do we need to try to prove ourselves and our worth to others? These two questions are things I have struggled with greatly as of late. I find myself wondering why is that no one in my family reads my writing. Do they not care, orContinue reading “Disabled Words Used As Descriptors Is Ableist”
Thanks For Bursting My Bubble
What is it like to escape your home? To truly be able to leave your home without a care in the world. To be outside and breathe air not causing you to gasp for breath? I wonder what it is like to be free, to be out and about and doing things with people. BitterContinue reading “Thanks For Bursting My Bubble”
Immunocompromised = Loneliness
What is being immunocompromised like? In a time where there are many viruses outside my home it makes me fear leaving the house. Not only because of the symptoms caused by MCAS but also because of the symptoms caused by having a weakened immune system. There are real dangers lurking outside my safety bubble. ThereContinue reading “Immunocompromised = Loneliness”
Writing Has Been A Challenge
Lately I have been stuck trying to write but something is getting in the way. Is it the brain fog, is it the exhaustion I am facing making a documentary? I feel a little stunted and I am not sure why. I have struggled to find words to write down for the purpose of shortContinue reading “Writing Has Been A Challenge”
Abandonment; Caretakers Burnout
Boris Levenzon sent me a question this last week: “I wonder if you care to talk about dealing with abandonment, friends, spouses, etc. I guess it touches on caretakers burnout as well. And how you said that anger and resentment are toxic, but how do you deal with not hating or resting the ones thatContinue reading “Abandonment; Caretakers Burnout”
I Am Calling YOU Out; Ableist Society
Where does this feeling of inadequacy come from? Why do we need to try to prove ourselves and our worth to others? These two questions are things I have struggled with greatly as of late. I find myself wondering why is that no one in my family reads my writing. Do they not care, orContinue reading “I Am Calling YOU Out; Ableist Society”
Living In the Bubble; Cosplay and Streaming
When I wrote in my journal when I was younger, I would note the song I was listening to. Did anyone else do that? In journals, I would write down the music I was listening to, so if I looked back on that moment in time by reading it, I would know how I wasContinue reading “Living In the Bubble; Cosplay and Streaming”
Being Chronically Ill in 2022
While the world is tired of hearing news about Covid19 there is still this aggressiveness towards people who are choosing to wear masks. Seeing artwork by artists online expressing how they feel verbally harassed by people because of the uncomfortable memories around Covid19 masks seem to remind others of. Where I live the pandemic isn’tContinue reading “Being Chronically Ill in 2022”
Life In The Bubble 