Disjointed With Ehlers-Danlos Syndrome

Another day another dislocated knee. I sat on the floor looking upwards into the hole where the needle needed to be placed in the machine. The sewing machine needles keep breaking not sure if this is because of a tension issue or something else. Needless to say it needed to be replaced. I got downContinue reading “Disjointed With Ehlers-Danlos Syndrome”

Disabled Words Used As Descriptors Is Ableist

Where does this feeling of inadequacy come from? Why do we need to try to prove ourselves and our worth to others? These two questions are things I have struggled with greatly as of late. I find myself wondering why is that no one in my family reads my writing. Do they not care, orContinue reading “Disabled Words Used As Descriptors Is Ableist”

Thanks For Bursting My Bubble

What is it like to escape your home? To truly be able to leave your home without a care in the world. To be outside and breathe air not causing you to gasp for breath? I wonder what it is like to be free, to be out and about and doing things with people. BitterContinue reading “Thanks For Bursting My Bubble”

Immunocompromised = Loneliness

What is being immunocompromised like? In a time where there are many viruses outside my home it makes me fear leaving the house. Not only because of the symptoms caused by MCAS but also because of the symptoms caused by having a weakened immune system. There are real dangers lurking outside my safety bubble. ThereContinue reading “Immunocompromised = Loneliness”

Writing Has Been A Challenge

Lately I have been stuck trying to write but something is getting in the way. Is it the brain fog, is it the exhaustion I am facing making a documentary? I feel a little stunted and I am not sure why. I have struggled to find words to write down for the purpose of shortContinue reading “Writing Has Been A Challenge”

Living In the Bubble; Cosplay and Streaming

When I wrote in my journal when I was younger, I would note the song I was listening to. Did anyone else do that? In journals, I would write down the music I was listening to, so if I looked back on that moment in time by reading it, I would know how I wasContinue reading “Living In the Bubble; Cosplay and Streaming”