Immunocompromised = Loneliness

What is being immunocompromised like? In a time where there are many viruses outside my home it makes me fear leaving the house. Not only because of the symptoms caused by MCAS but also because of the symptoms caused by having a weakened immune system. There are real dangers lurking outside my safety bubble. ThereContinue reading “Immunocompromised = Loneliness”

Writing Has Been A Challenge

Lately I have been stuck trying to write but something is getting in the way. Is it the brain fog, is it the exhaustion I am facing making a documentary? I feel a little stunted and I am not sure why. I have struggled to find words to write down for the purpose of shortContinue reading “Writing Has Been A Challenge”

Abandonment; Caretakers Burnout

Boris Levenzon sent me a question this last week: “I wonder if you care to talk about dealing with abandonment, friends, spouses, etc. I guess it touches on caretakers burnout as well. And how you said that anger and resentment are toxic, but how do you deal with not hating or resting the ones thatContinue reading “Abandonment; Caretakers Burnout”

I Am Calling YOU Out; Ableist Society

Where does this feeling of inadequacy come from? Why do we need to try to prove ourselves and our worth to others? These two questions are things I have struggled with greatly as of late. I find myself wondering why is that no one in my family reads my writing. Do they not care, orContinue reading “I Am Calling YOU Out; Ableist Society”

Living In the Bubble; Cosplay and Streaming

When I wrote in my journal when I was younger, I would note the song I was listening to. Did anyone else do that? In journals, I would write down the music I was listening to, so if I looked back on that moment in time by reading it, I would know how I wasContinue reading “Living In the Bubble; Cosplay and Streaming”

Being Chronically Ill in 2022

While the world is tired of hearing news about Covid19 there is still this aggressiveness towards people who are choosing to wear masks. Seeing artwork by artists online expressing how they feel verbally harassed by people because of the uncomfortable memories around Covid19 masks seem to remind others of. Where I live the pandemic isn’tContinue reading “Being Chronically Ill in 2022”

Documenting The Documentary Journey

Life in the bubble is a documentary that is being made possible by Storyhive and Telus. I have been granted an amazing opportunity to share what it is like to live a bubble life. As someone who lives with my sock to life outside of my bubble is scary. And I feel like it’s timeContinue reading “Documenting The Documentary Journey”

I Feel Sick All The Time

What is chronic illness like, it is always feeling under the weather. I never feel 100%, this is reality for me. Somedays I can hardly eat, others I feel like I am running on empty from the moment I open my eyes. I feel sick all of the time, there isn’t a day where IContinue reading “I Feel Sick All The Time”

Today I Am Not OK; Inside A CPTSD Mind

CPTSD makes me feel alone. I feel isolated from the trauma I have lived through. Experiences in time I can not erase though I long to delete them from my past. Isolating myself makes me feel safe yet alone. I think that being alone during these times is safer for me. With raw emotions atContinue reading “Today I Am Not OK; Inside A CPTSD Mind”

Silence Is Violence Domestic Abuse

*Trigger Warning this blog post talks about domestic abuse/domestic violence* Why am I writing about abuse on a blog about surviving chronic illness? I am writing it because enduring chronic disease with an abusive spouse makes it harder to survive and strive for the things we love. Abuse can happen in relationships when dealing withContinue reading “Silence Is Violence Domestic Abuse”