MCAS Hangover

For those of you who have the terrible Mast Cell Disease the hangover may be something you are familiar with. Lucky for those of who have Mast Cell Disease we feel hungover when we wake up in the morning. The hangover feeling isn’t from partying all night, or from drinking, it is from our histamine bucket reminding us we pushed our bodies to far. Sometimes trying to source out what the cause is of the hangover is a challenging task. One in which we tend to come up empty handed.

MCAS, mastocytosis, idiopathic anaphylaxis are diseases which cause harm to the body and mind. When you wake up with a migraine where you feel like your brain is dried out. The pain I have in my brain this morning makes it challenging to type but if I leave things unsaid while experiencing it, I may not be able to articulate it when it isn’t happening.

Mast cell hangovers happen, our histamine bucket is to full and it is a way of our bodies telling us we ate something, drank something we shouldn’t have. It is vital when in this state to hydrate, be gentle with ones self and resort to a safe food list. These are things that have worked for me and if they happen to work for you that is wonderful. I simply am sharing my experience and what has been beneficial for me in hopes it helps others.

My intentions with this blog have always been to spread hope and put out information of things that have worked for me. I understand and I know each of us are so different and react to things differently than others with the same Mast Cell disease. This is why information share in vital, but also should be taken as a grain of salt. My safe foods harm others, and visa versa other peoples safe foods will harm me. I do not use scented products, but others may use scents that are ok for them to use. We all differ, our journeys with the disease may have some similarity with the symptoms but the cause of the symptoms may be different things entirely. An example would be kiwi’s I haven’t been able to eat them in over fifteen years, but some people with MCAS or Mastocytosis can eat them and experience no reactions.

It is pertinent to our own experience to be gentle with ourselves. While allergic reactions are scary, life treating and disrupt our daily lives, we do need to remember we are fighting an invisible devil, a white blood cell that thinks it is protecting us. While we may want to eat that dark chocolate and indulge is it worth that little devil attacking us for a day, or a week?

Being patient with ourselves and giving ourselves time to understand what we are facing is a matter of self-care and self-respect. I have learned to say “No” to people all the time now and it is liberating. I can not and will not put myself in harms way for anyone now, this is because of the Mast Cell hangover, because it can last for up to six days for me. I say no to scented products because I no longer want a chronic sinus infection. I cut scented products out to protect myself from harm. Should everyone with Mast Cell Disease do the same? I do not have a definitive answer for that, but I encourage everyone to find out what their triggers are in order to have the best quality of life.

Thank you for being here for another blog post, I hope to do my best and post once a week, with this unpredictable disease and disease I may not be able to do. I will do the best I can to write when I can. I feel as though my writers block has lifted for now (knock on wood) and will do my best to be here and on my YouTube channel. Until next time, keep your chin up, you are doing the best you can.


Published by aricubangbang

Artist and writer. Living with chronic illness and writing about it. I have survived two cancers, I live with hyperadrenergic postural orthostatic tachycardia syndrome, ehlers-danlos syndrome, mast cell activation syndrome, jaundice, esophagus dysmotility, Chilblains, Raynaud's, migraines, asthma, and more. I have mental health problems which I am not ashamed of, I have CPTSD, anxiety, and depression. My medical history is extensive, but I will continue moving forward. I have hope to help others not feel isolated alone, and forgotten by an ableist society.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: