It has been a long time since I wrote a blog, I am still chasing some sort of normalcy which is difficult but trying my best to have a life. While I am doing what is best for me, I am again met with the distain healthy people house for people with illness and disability. While not all health people are like this, when it comes to people trying to tell me what I need to prioritize I have an issue with this.
I will always put my health first. I will do what is best for me and my health since I am unable to do everything I want to do. I do try to do things with others like collaborate, but hanging out with people often can lead to being extremely drained tired and unable to function for school. My passions are school, writing and art, and when I do not prioritize my health, I can not do those things let alone hang out with people.
I make time for people who treat me good, who treat me human. Sometimes people call other people out in a way which is not understanding nor helpful. People will say things they actually mean to say to themselves, they are projecting their issues. People think they are calling someone out who has chronic illness when in actuality they are just making the situation worse. When someone with chronic illness can not make something because of their disease they are viewed as flake or lacking priorities. This is not true. Having chronic illness and putting your health first is not a bad thing. You should be doing what is best for yourself and everything else should be secondary. We as the chronically ill must protect ourselves and we know our limits.
I have found myself again brought to the conclusion that healthy people will continue to have hard time with people with chronic illness because they still us through an ableist lens. They figure we should be on the same page of them, instead of them bothering to see our perspective. Needless to say, being reminded of this again has brought me back to the blog to talk about this issue.
Healthy people thinking they are calling out an issue in a disabled person are not seeing the illness nor the hardships that person is living with. People who are sick are not flakes, it is exhausting to fight for your life every single day. Sometimes I disappear from social media because I feel misunderstood. I feel people are not understanding the hardship of illness. Every now and then I will get a message from people about how they appreciate my sharing my story and those messages are why I continue. People who are do not understand illness may never will understand, but I will continue to talk about the ableist undertones in what people do in hopes of one day shredding ableism to a pulp. The fact that healthy people feel the need to say things to the disabled community just goes to show how the view of the abled bodied is favored over the chronically ill and disabled.
The link below is where you can find some of my content
https://linktr.ee/villainari
Life In The Bubble 