When normies have told me how they can not sleep I can not relate. I have high norepinephrine in my body pumping all of the time, and at night is as though my hyperPOTS is waiting for the cover of night to mess with me. I am so tired but can not sleep. I find no reprieve in rest as I seek an unattainable feat. Slumber deep in souls peace keep is what I seek. But disease keeps me awake, a watchful eye I did not ask for. Tired now my body ache, slips on eye lids heavy, blood pressure rising as sweat and tears break free. I long for the night to cuddle me and rock me to sleep. Norepinephrine is all I find in the slumber-less land of hyperPOTS.
Insomnia HyperPOTS You Suck
Published by Ari Villain
Artist and writer. Living with chronic illness and writing about it. I have survived two cancers, I live with hyperadrenergic postural orthostatic tachycardia syndrome, ehlers-danlos syndrome, mast cell activation syndrome, jaundice, esophagus dysmotility, Chilblains, Raynaud's, migraines, asthma, and more. I have mental health problems which I am not ashamed of, I have CPTSD, anxiety, and depression. My medical history is extensive, but I will continue moving forward. I have hope to help others not feel isolated alone, and forgotten by an ableist society. View more posts
Life In The Bubble 
I completely know how that feels! I feel like I am dropping dead with sleep, only to turn the light out and my body feels like I am excited for a lottery draw or something …the adrenaline is pumping , melatonin has left the building, so I have a winning strategy.. cough….knit until I drop. …not ideal , but for this week. I’ll roll with it.
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I am happy to hear you have a winning strategy! I understand, I usually do art, make videos, write, play video games, seems to be a never ending cycle. So sorry for the late response, I was dealing with a MCAS reaction forever it seems. I appreciate the comment, and sorry to hear HyperPOTS also attacks you with the excitement because of the adrenaline running through the body, I am the same way and it sucks, but hey we can be creative LOL.
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Yes it does suck, I can’t find any other way to describe the experience haha . The creative outlets are a must .just joined TikTok to try to fundraise for equipment and get the materials to create things to share with others..patterns, ideas, tips …whatever works I guess. Hope you are feeling better today.I have been given a new diagnosis to add to the list…TMJ… soft food here I come.glad I love curry and soups lol
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