What I Did This Summer

One of the reasons I’ve been so busy over this summer is because I’ve actually been working more on my book which I actually completed. I am so excited to actually even say that I have finished it. I have written it over and over again over the years I’ve written it and destroyed it and come back to it and destroyed it again. There’s something about writing the book that I have just found difficult. It is a fragmented multifaceted point of you that kind of jumps around from different time periods of my life. However it is something that I have been working on for a long time I know that it is now in the final stages and I hope to be able to publish it soon.

Another thing that I’ve been doing is been doing a little reading things here there where I’ve had to like do writing prompts and then writing a short story. Over the last year I’ve had some of my short stories and some of my poetry published and some anthologies and I am very excited about the future going forward. I know when I got my first acceptance letter I actually cried I’ve never thought it was going to happen. Deep down I always knew it was going to happen because I am a pretty driven person and I don’t want to give up I want to continue to move towards my dreams and I want to continue to try to make a difference within the chronic illness community and help inspire other people to follow their passions their dreams and live a life where they are happy.

A lot of the time when living with illness we seem to get lost in the rut of being sick. I taught myself to lift myself out of the rut numerous times it is very difficult to do so but it is possible remember that you need to be your own strength. Sometimes leaning on each other is a great way of being able to continue forward but sometimes other people cannot be there for you when you need them the most so this is when it’s the most important to be there for yourself. This is why I started writing and fine-tuning my book. I wanted to be able to finish it before 2022. 

I feel as though there’s a fire burning within me that I need to let out and stop trying to expunge it. Even while I’m writing this I am favouring and have extremely bad brain fog but I know that I want to do this I want to continue my blog and I wanna continue raising awareness.

I have a lot of things on the go just as far as trying to keep myself busy mostly because of the whole Covid situation and being locked inside.

COVID-19 has really showed me who my friends are well and aren’t because through the course of the last two years I’ve had to cut people out because of their selfishness when it comes to my health and I’m not willing to put my health on the line for a visit. 

I also wanted to share I am on tiktok and make videos on there for awareness come on over and check them out. While I do not post everyday I post when I can. https://vm.tiktok.com/ZMREwmfJ6/ 

Thank you for being here and reading my post and I hope to do my best to raise awareness and to spread hope because there is hope when you’re living with chronic illness and it doesn’t have to be all dark all the time. Yes the journey is difficult and challenging and people that don’t have chronic illness we never understand it. But you know what, I understand it and I know you’re not alone because I felt similar emotions too.

Will post again soon thank you for being here and taking the time out of your busy day to read my blog. 

Published by Ari Villain

Artist and writer. Living with chronic illness and writing about it. I have survived two cancers, I live with hyperadrenergic postural orthostatic tachycardia syndrome, ehlers-danlos syndrome, mast cell activation syndrome, jaundice, esophagus dysmotility, Chilblains, Raynaud's, migraines, asthma, and more. I have mental health problems which I am not ashamed of, I have CPTSD, anxiety, and depression. My medical history is extensive, but I will continue moving forward. I have hope to help others not feel isolated alone, and forgotten by an ableist society.

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